Hi Guys,
Just to explain a little about Enzo.
He has a very rare genetic condition called SCN8A,
Enzo will be 4 years old on July 8th.
We have struggled with this awful condition and only knew something was wrong with him when he was just 6 months old.
We are under 4 different hospitals and have strict routine visit to all of them including,
James paget,Norfolk and norwich,adenbrookes, and great Ormond street.
Enzo unfortunately can not eat as we do and is fed through a tube all the time,we are currently waiting for him to have a peg fitted into his stomach,
Enzo has upto 5 seizures a day and can last upto 2 hours per one including his whole body going stuff,
with his ongoing seizures, unfortunately, he had bitten the front of his tongue clean off and had to have an operation,
Enzo is unable to crawl,walk talk eat or even hold his own head up,
He is regularly sick 😫
His life span is not as long as you would expect,
We don’t know if he will ever walk or do any simple things we all take for granted.
As a family we are strong and our lifes revolve around Enzo ❤️
@mikencfclinton @Tom @James Oulton Fc have very kindly organized Enzos shield as a very kind gesture for us to receive respite as a family,
We are truly thankful for the oulton utd family that can take part and raise awareness.
